It’s a question many people ask – maybe not verbally, but I can tell it’s on their mind:
What’s it like living with a rare, incurable, progressive, debilitating, terminal disease?
Continue reading “What’s it like, living with a rare disease?”
Hi, I’m Meg, and I have a rare disease called Spinocerebellar Ataxia – Type 1. I used to be a high school English teacher, but now I’m a stay-at-home mom who’s sharing this next chapter of my life (& attempting to promote SCA awareness) through this blog.
It’s a question many people ask – maybe not verbally, but I can tell it’s on their mind:
What’s it like living with a rare, incurable, progressive, debilitating, terminal disease?
Continue reading “What’s it like, living with a rare disease?” →
I’ve recently decided to resign from teaching high school English.
And if only it were all as simple as that sentence makes it seem!
Let’s unpack…