Category: Ataxia

The Juxtaposition of SSDI

The Juxtaposition of SSDI

Personal experience has taught me that when most people encounter someone with a disability, they tend to do whatever it takes to make the situation easier and better. Like, not only will they help me walk, but they’ll carry all my stuff and bring me the most comfortable chair and make sure I’m completely content…

Now, obviously this isn’t the case every time. But you know who actually does the opposite of this? Who seems to make things even more difficult for people with disabilities on purpose? Who creates barriers for people who can’t walk to jump over? Our government.

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When Quitting is Winning

When Quitting is Winning

One of the toughest parts of having a rare disease is having to figure out a lot of it on your own.

Chances are, there isn’t a role model in your life whom you can use as an example. Your friends and (usually) family can give suggestions, but not experienced-derived advice. Plus, even if you know someone with the same disease as you, you’re likely to have different realities. That’s definitely true for Ataxia, where our symptoms and rates of progression are as unique as the condition itself.

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All I Want for Christmas…

All I Want for Christmas…

Way back in August I wrote about items that help make living with a disability easier. But, once I posted it, I had a whole bunch of readers confused about why I didn’t include walkers and grab rails and shower seats… all of those essential tools that we use daily.  I realize now I should have been more specific – my post was on non-medical items that can make life easier. 

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Snow Days

Snow Days

I recently wrote a post stressing the importance of taking risks and stepping out of comfort zones… and then we got our first heavy snow fall of the year. I know I’m not alone in the annual November question of why I still choose to live in Western New York. There are very few people who actually enjoy going outside in weather like this – and I guarantee none of them have Ataxia.

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The Unnecessary Effect of Ataxia Anxiety

The Unnecessary Effect of Ataxia Anxiety

In one of my first posts, I made a point to say, “I have Ataxia. Ataxia doesn’t have me.” Separating yourself from your disease is an essential part to being able to stay sane and happy.  If you have a chronic illness, it’s so important not to let it control your life. So important, yet so difficult.

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