I pride myself on being a pretty positive person (with a natural knack for alliteration). This blog gets compliments all the time on how it helps others be more optimistic.
Which is why Facebook is killing me.
Category: All Posts!
Road Trip Tips
No road trip this year, since we have a slightly different adventure planned for March. (EDIT: The coronavirus pandemic would’ve prevented a 2020 road trip anyway – good thing we didn’t have one planned!) Instead, here’s some advice and encouragement so that I can live vicariously when you take a trip of your own…
The Juxtaposition of SSDI
Personal experience has taught me that when most people encounter someone with a disability, they tend to do whatever it takes to make the situation easier and better. Like, not only will they help me walk, but they’ll carry all my stuff and bring me the most comfortable chair and make sure I’m completely content…
Now, obviously this isn’t the case every time. But you know who actually does the opposite of this? Who seems to make things even more difficult for people with disabilities on purpose? Who creates barriers for people who can’t walk to jump over? Our government.
When Quitting is Winning
One of the toughest parts of having a rare disease is having to figure out a lot of it on your own.
Chances are, there isn’t a role model in your life whom you can use as an example. Your friends and (usually) family can give suggestions, but not experienced-derived advice. Plus, even if you know someone with the same disease as you, you’re likely to have different realities. That’s definitely true for Ataxia, where our symptoms and rates of progression are as unique as the condition itself.
All I Want for Christmas…
Way back in August I wrote about items that help make living with a disability easier. But, once I posted it, I had a whole bunch of readers confused about why I didn’t include walkers and grab rails and shower seats… all of those essential tools that we use daily. I realize now I should have been more specific – my post was on non-medical items that can make life easier.