Category: All Posts!

Inclusive Adventures: Road Trip #1, Pt I

Inclusive Adventures: Road Trip #1, Pt I

An unfortunate stereotype that comes with being disabled, is people assume you don’t do ANYTHING. Like, going out to dinner must be this huge, awesome event since I can’t even walk.

Well, I’m here to prove them very wrong.

You see, one of the coolest things I’ve ever done is the cross country road trip my husband and I take every year. Together, we’ve been to 42 different states. 

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What’s it like, living with a rare disease?

What’s it like, living with a rare disease?

It’s a question many people ask – maybe not verbally, but I can tell it’s on their mind:

What’s it like living with a rare, incurable, progressive, debilitating, terminal disease?

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